BUT IT IS NOT TO BE

Remember the puzzle pieces mentioned earlier?  The picture won’t look nice, the puzzle is missing “pieces” or are they there and just won’t fit?  Those
“pieces” are the thoughts, ideas, feelings, past joys that have switched places on that puzzle board in the mind.  They no longer look pretty, feel right or fit in the correct hole.  The pictures in the mind no longer look like they did when I    was in my prime.

I search for words so my tongue can release the creative me, the loving me, the heartfelt joyous me, but it is not to be.

I want to know you…my brain once did, and my mouth could spill a hundred words a minute…not anymore. but it is not to be.

DISCLAIMER – I am a Registered Nurse, not a doctor and the information provided is from trusted resources.  Should you need more information you can find them at the following references I have utilized:

  •  Alzheimer’s by Medicine X-USA on Facebook
  •  https://www.alz.org
  • Alzheimer’ Disease Treatments https://www.aarp.org
  • The 36 Hour Day by Nancy L Mace MA & Peter Robins MPH
  • The Changing Brain by Teepa Snow MS OTRL FAOTA
  •  AARP – Dementia Resource Guide
  •  DailyCaring.com
  •  CDC.gov
  •  Medicare.gov
  • Hadley Vlahos RN The In-between Unforgettable Encounters During Lifes                             Final Moments

 

MY HEART MY MIND

Have you seen my heart; because it hurts when I should know….and don’t.  I try to think of who you are and can’t.  Have you seen my mind; because it’s lost when I try and try to know but only you know that you are my daughter.

Some may look at me as if I have no mind, that I am just a stupid person who doesn’t know anything.  I know so much and my mind really is filled with voices, pictures, fun-filled days and my mom’s tender touch and laughter.
But now, it all remains there up in my mind at so many different levels most of which is just a blur. If memories remain at all in my thinning mind, I won’t be able to share any of it.  Have you seen my mind…. it’s swirling, all mixed up like a tornado sometimes.  What I have left doesn’t want to come out in an orderly way. If I could put the puzzle pieces together, I would have a story resembling poetry moving softly like a summer breeze through the leaves.

DISCLAIMER – I am a Registered Nurse, not a doctor and the information provided is from trusted resources.  Should you need more information you can find them at the following references I have utilized:

  •  Alzheimer’s by Medicine X-USA on Facebook
  •  https://www.alz.org
  • Alzheimer’ Disease Treatments https://www.aarp.org
  • The 36 Hour Day by Nancy L Mace MA & Peter Robins MPH
  • The Changing Brain by Teepa Snow MS OTRL FAOTA
  •  AARP – Dementia Resource Guide
  •  DailyCaring.com
  •  CDC.gov
  •  Medicare.gov
  • Hadley Vlahos RN The In-between Unforgettable Encounters During Lifes                             Final Moments

 

(MORE) MY HEART MY MIND

The following is a story that could be anyone’s; it could be mine.

Have you seen my heart?  Have you seen my mind?  I’m not sure about yesterday and today is a blur as if I am in a rainstorm.  I sometimes remember you then again you are the same stranger you were last week.  It didn’t start out with me not knowing.  I was once a vibrant nurse who cared for other Alzheimer’s patients.  Now, I need help remembering the words I used for my favorite beverage, the street on which I grew up and a string of so many other words.

You can take me down memory lane, but that road is unfamiliar.  At one time the memories brought me joy happiness, and absolute love, Now, I am not sure if I cared back then, because I don’t think I care now.

I look but I don’t see.

I try but I don’t succeed.

I cry but I have no tears.

I walk but I get nowhere.

I eat but I don’t taste.

I close my eyes, but I don’t sleep.

DISCLAIMER – I am a Registered Nurse, not a doctor and the information provided is from trusted resources.  Should you need more information you can find them at the following references I have utilized:

  •  Alzheimer’s by Medicine X-USA on Facebook
  •  https://www.alz.org
  • Alzheimer’ Disease Treatments https://www.aarp.org
  • The 36 Hour Day by Nancy L Mace MA & Peter Robins MPH
  • The Changing Brain by Teepa Snow MS OTRL FAOTA
  •  AARP – Dementia Resource Guide
  •  DailyCaring.com
  •  CDC.gov
  •  Medicare.gov
  • Hadley Vlahos RN The In-between Unforgettable Encounters During Lifes                             Final Moments

 

 

WHAT IS ALZHEIMERS?

LET’S FIGURE THIS OUT TOGETHER

Alzheimer’s is a disease that affects not only the patient but the family and friends as well.  The doctors and nurses who care for the patient work diligently to help them on a day-to-day basis.  It is a challenge sometimes to keep them safe, protected and honored for who they are at the present time.

Here is information about Alzheimer’s as the Alzheimer’s Association describes.  Alzheimer’s is memory loss that can disrupt a person’s life due to the brain disease which impairs reasoning and thinking skills.  There are approximately 5 million people with Alzheimer’s.  Some of the warning signs to take notice of are:

  1.  Memory loss forgetting recently learned information.  They may forget names, dates, people and places they knew well a short time ago.
  2. Concentration is off, not paying attention to once familiar activities such as housekeeping baking recipes and paying bills.
  3. Not being able to drive to once familiar locations not aware of how to play card games that once were weekend fun times.
  4. Being confused with how they got to a certain place; or what day it is.
  5. Trouble following conversations, finding the right words or calling a loved one the wrong name.
  6. Putting things in unusual places and unable to retrace steps to find them and accuse others of stealing them.
  7. Decreased or poor judgment such as giving large amounts of money away, not tending to hygiene.
  8. Withdrawal from normal activities socially or working on once favorite hobbies.
  9. Changes in mood and personality
  10. Becoming suspicious, confused, fearful or upset more easily.

DISCLAIMER – I am a Registered Nurse, not a doctor and the information provided is from trusted resources.  Should you need more information you can find them at the following references I have utilized:

  •  Alzheimer’s by Medicine X-USA on Facebook
  •  https://www.alz.org
  • Alzheimer’ Disease Treatments https://www.aarp.org
  • The 36 Hour Day by Nancy L Mace MA & Peter Robins MPH
  • The Changing Brain by Teepa Snow MS OTRL FAOTA
  •  AARP – Dementia Resource Guide
  •  DailyCaring.com
  •  CDC.gov
  •  Medicare.gov
  • Hadley Vlahos RN The In-between Unforgettable Encounters During Lifes                             Final Moments
  • https://alz.org/alzheimer’s-dementia/10signs/whatis-alzeihmer’s/brain_tour

 

CHECKLIST- DIAGNOSIS BY HEALTHCARE PROFESSIONAL

I am not a doctor nor am I an expert in the neurological field of Alzheimer’s and Dementia.  I am writing this from a self-learned perspective as well as a nurse who has cared for patients and researched current information on the subject matter.

 When people display memory problems it’s usually the first sign that something is wrong.  To what level those memory changes occur are individually noted.  Not everyone progresses at the same pace.  

So, just a short synopsis of what happens in the brain when someone develops dementia or Alzheimer’s.  Alzheimer’s is a degenerative brain disease and the most common form of dementia; Dementia isn’t a specific disease; it is a term that describes a group of symptoms.  

It can be very eye-opening for families to be told their family member is being diagnosed with either disease.  The symptoms may be mild and un-noticeable at first especially by family who is with their person consistently.  The day-to-day encounter isn’t as striking as when someone meets the person after being apart for a while.  It may be more surprising to family who hasn’t interacted recently.

Working with a person with Alzheimer’s or having a loved one with the disease can be a challenge but, what if you don’t know if that’s what is going on with them?  How do you tell if its Alzheimer’s?  What if it is something else?

It’s important to have a proper assessment by a qualified healthcare provider to be certain.  But the following checklist will be helpful as starting point when signs are subtle or if you just want to learn more.

CHECKLIST:

  • Is my special person forgetting more lately?
  • Is this person whom I love and care about not recognizing usual situations in life such as how to get from point A to point B?
  • Is my loving person not taking care of personal hygiene as before?
  • Are there bills on the table that have not been paid?
  • Has the person forgotten children’s grandchildren’s names?
  • Has my loved one placed items in unusual places and cannot retrace steps to locate them?
  • Have you noticed conversations that are forgotten, rebuked, or angrily not remembered as if they haven’t happened?
  • Have they forgotten appointments consistently?
  • Has the house not been kept clean or orderly unlike previous way of living?
  • Have they gotten into altercations thinking someone is stealing spying, or treating them badly?
  • Have they entered seclusion not wanting to answer the phone, texts, or visitors to their home as before?
  • Do they become angered easily with outbursts about anything that may seem trivial?
  • Have they changed eating habits; stopped eating and losing weight?
  • Do they seem depressed, despondent, non-caring, suicidal?
  • Do they tend to become disengaged with what brought pleasure in the past outings, card games, church activities, visitors, shopping, or vacation planning?

If any of these situations are noticed, look carefully at your loved one who may need a professional evaluation for Dementia/Alzheimer’s.  Do not be afraid to get involved; to help and be there for them.  You may be the only one.

DISCLAIMER – I am a Registered Nurse, not a doctor and the information provided is from trusted resources.  Should you need more information you can find them at the following references I have utilized:

  •  Alzheimer’s by Medicine X-USA on Facebook
  •  https://www.alz.org
  • Alzheimer’ Disease Treatments https://www.aarp.org
  • The 36 Hour Day by Nancy L Mace MA & Peter Robins MPH
  • The Changing Brain by Teepa Snow MS OTRL FAOTA
  •  AARP – Dementia Resource Guide
  •  DailyCaring.com
  •  CDC.gov
  •  Medicare.gov
  • Hadley Vlahos RN The In-between Unforgettable Encounters During Lifes                             Final Moments
  • https://alz.org/alzheimer’s-dementia/10signs/whatis-alzeihmer’s/brain_tour

 

 

The World is Full of Anxiety – Temper Yours

    Anxiety is nondiscriminatory when it comes to who will be afflicted.  The definition of anxiety:   An uneasy feeling of discomfort or dread accompanied by a feeling of apprehension and possible danger as per medical interpretation.  It may be a slight or quite scary feeling of being uncomfortable due to a perceived threat.  That threat may appear as physical, mental, or emotional.  The feelings may escalate to an increase in heart rate, dizziness, shortness of breath, a nonexistent but true feeling of a lump in the throat, a choking sensation, blurred vision, numbness and/or tingling in hands, head, and scalp.  Most of the time anxiety appears randomly and is not due to any specific stimuli such as someone attacking you in the middle of the night.  One can even be suddenly awakened in the middle of their sleep with a feeling of not being able to catch their breath.  At times like this if it hasn’t happened before the person believes they are having a heart attack.  Focused on the fear of dying they become even more short of breath as they hyperventilate causing dizziness, feeling faint, and they may even experience chest discomfort.

     Anxiety can start at a very early age with children as young as toddlers.  If they are thrust into unfamiliar surroundings such as daycare, they may experience separation anxiety. This may happen especially if they have been primarily with a parent for a significant amount of time before going off to be cared for by strangers.  Some children adjust more readily and others are scared and lonely, and even depressed when the parent leaves even for short periods of time.

The younger anxious me I recall my own experience as a child where I immediately was missing my mother when she wasn’t home especially during the nighttime hours.  The daytime seemed less scary but as soon as the curtains on the sun were drawn I felt too afraid to be without her.  Crying wasn’t always the way for me to get attention but whining, pulling at my mothers arms, pouting, and even pretending to be sick got her attention.  When I did all these things I knew she would respond somehow so as not to leave me with a babysitter.  It didn’t always work. At the time I didn’t appreciate my mother (who was a widow when I was five) needing some time to herself or perhaps had demands placed upon her by relatives, friends, and neighbors who needed her help from time to time; meaning I needed to stay home.  Telling her I was sick wasn’t really a lie; I did feel ill; really ill as if I would get rid of supper in a second if it meant she would stay home.  I had frequent “stomach aches” that actually hurt and today I know that it was anxiety as it related to her departure.

   We all need outlets to relieve anxiety whenever it does occur.  Not knowing why I was feeling that way then, I know today that when I slept in her bed while she was gone I had more of a sense of calm until she returned.  There were times at school especially in the early years when I would be called up by Sister to process some work on the blackboard that I would nearly wet my pants.  This can’t be happening; I know the answer but all the other kids are going to laugh at me for some reason I had conjured up in my head.  Sister would not allow them to provoke me or laugh but in my mind, I couldn’t be up there in front of them all so they could possibly point fingers at me.  Even if it wasn’t true that there wouldn’t be a forced encounter of all eyes upon me I still could feel my chest tightening, my voice lowering, and my hands sweating.  Certainly, at that age, I had no idea anxiety was starting to cook in my veins and arteries and make my blood pressure go up, my face to turn red, and my body to feel limp.  As my life went on there were more than simple trips to the blackboard that would unleash a whole new distorted view of anxiety, depression, and loneliness that would play havoc with my life to this very day.

   More to come on how to temper anxiety due to the fact that it is a part of our world, but we can’t allow it to detract us from living a good life.